One of Bob Marley’s many songs is titled “So much trouble in the world”, and this is so true. There is so much trouble in the world, but when children are affected by all the happenings which the world delivers, it is just the worst thing, as parents or even human beings with feelings how do we protect children, how do we free them from pain and suffering, from being bullied, or abused, or even from their own minds?, How do we?. I thank God for all my healthy children, but I was born with empathy and often times I wonder if that really is a GOOD thing, because people with Empathy, feels a lot of pain, in the heart for many. Many who suffer or are in pain , most of whom they do not even know. I know I do.
Yazzy, I always cry out to you in post, always in jest, “Yazzy stop de bawling” and we all tease you and we laugh, but your ability to feel the pain of others which puts you Yazzy in distress to the point of tears shows of the Good person you are, and for that we love you here on Embracing Spirituality and we are happy that you are a part of us. Often times when I take on others problems and feelings and I want to help and defend, to hug them, pay the bill for them, lick dung de smaddy whey hurt dem, chop after de one whey abuse dem, I often wonder if having too much empathy is even good thing, would I have been better off as being a cold person? Someone devoid of all emotions, detached from everything, someone who had no feelings?.
I have a sister (ex sister, I am done with her!), the wicked one who I will never speak to again, yes Yazzy the one who use to pinch me in bed at nights, and who told my mother and father that I would often speak badly of them, de one whey bun mi wid de hot iron, de one whey, when I spilled the hot tea on the floor she told me to bend dung and lick it up, (I did not, I bawled and bawled, but I did not), de one whey hate mi like poison, de one whey….ok I am sure you all remember who.
She has a son who is Autistic. I even named him. I gave him a Muslim name which means “Son of the morning”. The boy was born 2 1/2 lbs, she had a fibroid as big as a watermelon, or was it a grapefruit? One ah dem, ah doe remember, (please note that my reference to the fruits and her fibroid s is not mocking her, it is the truth, albeit I do not remember which one) and was in the hospital for a very long time, he almost died twice, and the wicked mother came running to me, you all know who I am and what I do. So I, in my role as Obara Meji, sent her back to the hospital with rituals and the boy is now fourteen years old. We praise de Lord! Oore Yeye oooo!
Well out of all her boys, she has three, this son in my opinion is the best, de odda two are her with penises. That little boy grew and is so smart, people wonder about him , and I must say that she is a wonderful and loving mother to him especially. It took him ages to talk, yet he knew the workings of the computer in and out, he loves women breast, and does nit discriminate who fah breast fat or slim gal, old or young gal him will feel up, (uncanny is his obsession with titty). He can select music for any party, and make rhythms by just knocking his elbow and fist on a table, sweet to the point of having everybody jam to his music. He will try to Dj, no one knows what the hell he is saying, but his gibberish sounds so sweet that he has all of us jamming to his beat and gibber jabbing lyrics.
All me whey love dance and hack (act, a fool) fool fool, mi learn all the gibberish and sing it and dance in the kitchen when I am cooking. Ok, Ok, Cami I am wrapping up now! If anyone remember, Cami our obeah working blogger, admonished me one day saying that when other bloggers write a post my intros are too long, so I have been traumatized since then and am mindful of chatting tuh much! ((((Hugs to you Cami Cam!)))))
Ty, our brilliant blogger has again sought to simplify a brain disease which is affecting more and more the new generation, this is a great post. I thank her for this post, because we often times see people with this disease or people with mental disabilities and some people will mock and jeer them, some will be puzzled others fearful themselves of the what if’s, while some like me, will feel for them, love them, pray for them, protect them if we see them on the streets.
Once, after my wicked, evil, bitch of a sister and I were done with each other, her son, the boy who I saved twice from death, saw me on the street and shouted while running to me “Aunty Obara!, the mother caught him and dragged him away while I was in mid flight running to him, my arms open with joy. I tear up right now at the memory, O ma se oooo!
Once again, as with the Dementia post, Ty has managed to write this awesome post, which touched me, not only because of this little boy, but because I am human and I feel for all. If you can,try to watch the Movie called Mercury Rising with Bruce Willis, it shows you, in its own way, how special these children are. One day I will offer my spiritual observation on all these topics. Thank you Ty. All I ah try stop type is like dem set mi suh! Cami mek mi know if mi galang bad dis time oooo! Big up yuh self Brightisha Ty, yuh bright like stadium bulb!
I am fascinated by the brain. I am fascinated by the human body. I believe that GOD is amazing and that we are blessed. Many things that we cannot identify or understand, we lump it in a category and label it. We love to put people and things in groups. We label anything different strange. This happened in all arenas of life: within spirituality, medicine, education, science, and nature.
Before I touched on dementia, an abnormality of the aging brain. Today I wanted to touch on autism, an abnormality of the young brain. Like dementia, we do not understand it and have labeled a myriad of diseases as the autism spectrum. What is even more disheartening is that we have labeled children before they have gotten a chance at life with this dreaded disease.
So many theories are out there as to how and why it happens but none have been accepted as the standard. This diagnosis breaks the heart of every parent and dooms that child to a less than perfect childhood. I have a wonderful high school classmate who had her son a year before I had my first son. For protection of the child, let us call this child John. John was a fast developer, he walked when he was less than a year old, by age 2 could speak 4 different languages and was the bragging right of his mother.
He was an only child and so did not have any siblings to play with, so when his mother saw that he was a bit anti-social, she shrugged it off as to his environment. Living in the cold climate with not much cousins to play with and being kept indoors to keep warm. Well thing took a turn for the worst. Before he reached four he regressed, he could no longer speak. He could not form words and worse of all had problems walking. She was terrified. She took him to countless doctors and each told her the same thing, he had a autism spectrum disorder. John’s mother was beside herself, she almost died having him, and given him every ounce of love she had in her heart, only to hear the words that belonged in nightmares.
Autism is a conundrum to all. One in 68 children are now diagnosed with autism and each child is different. They all have different features. As a result, it is called a spectrum of disorders. Subsequently, the cookie cutter approach where one medicine would fit all or most, will not suffice. It requires extensive therapies and the choice of therapies depend on the child and their presentation.
The exact etiology of this disease is unknown what is known, however, is that there is an imbalance in the chemical makeup of the brain. Like dementia, you guessed it, protein build up is thought to be a factor. Whether the protein is the first or last factor is unknown. One key finding to support this was done decades ago by Dr. Cade, the inventor of Gatorade, he was a nephrologist (a kidney doctor) who thought that by stripping the blood of excess protein via hemodialysis, he could thwart autism. So he would dialyze these children and they would become “normal” and free of autism. Unfortunately, the effects were not long lasting and the risk of infection increased with each treatment, so this idea was quickly thwarted.
Then, the hunt for the protein began and the blame game started. Soon everyone had a thought and many stories to back it up. The most famous one is that there was a protein once used to preserve vaccines was the main culprit. However, the researcher who did this research was found to be a fraud and his findings were never duplicated. He did however make lots of money and paraded with many celebrities. The list is very exhaustive but the most current and the one that has the most traction is the thought that an imbalance in the gut bacteria which breakdown proteins leads to excess protein in the blood which then floods the brain. See below:
Now, my reasoning behind backing this theory, is that although there is no standard treatment, the one thing that benefits ALL children with autism, is dietary changes. Recently there was an article written about an intervention by parents in their interaction with babies led to the elimination of autism. See below:
Not too sure if I buy that this will work for ALL autistic spectrum but hey it is worth a try and who could not love more attention.
Now John, had extensive speech therapy, sensorimotor therapy and physical therapy and is doing much better. It took him years but he is as strong as they get. He is resilient and conquered what most adults could not. He is talking, speaks 3 languages: english, mandarin, and french. He is not only walking but running. He is 2 school grades behind, but at age 10, who cares. His disease he gotten his parents to eat better and his father has lost 45 pounds. I continue to pray for him and his family and am solid in my conviction that he is here to do great things. I am after all a mom first.
I wanted to also share this TED Talks by Faith Jegede where she shared her story about her brothers with autism. It is heart warming and makes you believe that despite the gloom and doom associated with this disease, that there is a beautiful rainbow on the horizon.
Thank you Obara Meji for this opportunity and space to share, enlighten, love and embrace.
Ará oko tí yóò jẹ búrẹ́dì á f’èsúrú ránṣẹ́ sílé. /
A farm dweller who wants to eat bread need to send some aerial yams home……Yoruba Proverb!
[Life is give and take; whoever wants to reap, must sow.]
All religions are valid as long as it teaches peace and love…..Obara Meji!
There are no disappointments in life, only lessons learned…..Obara Meji